Maureen Bonner-McCaskill shares an insight into her symptom management and daily medication for her rare terminal interstitial lung disease NSIP, Non specific interstitial pneumonia.
Tapering off Prednisolone is hard and weighing up the pros and cons and deciding on quality of life versus living with symptoms of gastro issues, pain and just existing is all a personal choice we have to choose for ourselves.
Its not easy but everyday is different meaning it's always best to roll with the good.
As Maureen says "don't write off your full day as it can all change in a second" 😃
We hope this video helps you somehow by sharing a small part of the decisions we make and continue to review and make in the treatment plan and symptom management of NSIP.
We love to hear from you please comment below🙌💜
Maureen & Danny 🙏
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